Service Description

FFU Scotland commenced in May 2014 as an online chat, support, information group and also as a public community page on Social Media- Facebook. We have subsequently developed over the years and are now a registered Social Enterprise since 2017.

FFU Scotland CIC offer support, information, signposting, training and advocacy to fibromyalgia sufferers, care support and professionals online and in communities.

FFU Scotland currently have two Ayrshire based support meetings which offer friendship, advice, information and also  supports for self-management of the syndrome.

Speakers and activities on various self management strategies attend  throughout the year. Other franchise meetings and affiliations across the country are in progress.

FFU Scotland community based service delivery  ( coming soon) will entail peer support and advocacy in Ayrshire to support self management, accessing services and supports, form filling and will work with members to develop their own self management outcomes.

The service will also offer drop in for information, sign posting and advice. Opportunities for volunteering , training around self management,  various Fibromyalgia training for sufferers, care support and professionals, workshops, craft retail opportunities, functional fitness and much more.

FFU Scotland currently offer social meet ups throughout the country, have various awareness and fundraising events, online social activities, weekly online trained pharmacy support to assist early intervention advice and support, resource page support for ways to interact in your communities and craft retail ventures with awareness merchandise to promote fibromyalgia and FFU as well as build sustainability.

FFU Scotland aim to support, empower and inspire people with fibromyalgia in Scotland at whatever stage of their journey , promoting self management and do so in conjunction with various professionals in health and social care, 3rd sector and private sectors.

We also aim to be a voice for the collective in Scotland seeking change , equality and inclusion with various partner agencies including health and social care partnerships, primary care and other third sector supports.

 

Costs

FFU Scotland  costs are under review and a tiered membership is in progress for all FFU Scotland members that wish to sign up and this will allow members exclusive deals, publications, and much more.

A donation (attendance and refreshment) of £2 a month can be made on attendance at the monthly support meetings which assists in the replenishing of refreshments and also to build up funds to help with subsidising of social events costs for members.

Duration

Our monthly community support in Irvine commenced in June 2015 and will take place on every third Thursday of the month and  there afterwards unless stated/advised.

FFU Scotland  from the  2nd May 2017 onwards have taken over the running of a support meeting at Crosshouse Hospital  every 1st Tuesday of the month. This will be ongoing unless stated/advised.

FFU Scotland are  available daily on Facebook with various supports/ activities and also have exclusive members site and public website in progress. FFU Scotland can also be found on Twitter.

IRVINE MEETING

18th May 2017 , 16th June 2017, 20th July 2017, 17th Aug 2017, 21st Sept 2017, 19th Oct, 16th Nov and 7th Dec 2017

CROSSHOUSE MEETING

2nd May 2017, 6th June 2017, 4th July 2017, 1st Aug 2017, 5th Sept 2017, 3rd Sept 2017, 2nd Nov 2017 and 5th Dec 2017.

 

Resources and Amenities

Community support meetings

Irvine- Fullarton Connextions Irvine – studio

Crosshouse – Alexander Fleming Education Centre

Other franchise supports/affiliations in progress throughout Scotland.

Service Delivery ( In progress coming soon to community)

Full FFU Scotland Support and Advocacy service will launch later in year. This will involve training for fibromyalgia sufferers , care support and professionals , self management support, information drop in service, peer advocacy and support programme, Functional fitness programme and more.

Accessibility

Community Support meetings

Irvine Fullarton Connextions is at the roundabout next to Cunninghame house. The building is accessible for all and has ample parking and disability spaces.

It can be accessed via bus to river-gate and walk over, train (closest public transport) and car.

Crosshouse Alexander Fleming Education Centre – Crosshouse hospital is easily accessible for all and has good bus links to the door. Disabled parking is available also. Signs will be internal to signpost the education centre all on ground floor.
Social Media

Public open pages are accessible by any member of the public however FFU support pages are closed confidential spaces and require request to join. FFU Scotland make contact with you via messenger with regards to this in advance of adding as a member.

You can find FFU Scotland on @united_fibro ( Twitter), https://m.facebook.com/fibroscotland/ ( public service page) and https://m.facebook.com/groups/1481334268768288 ( members support confidential page)

 

Phone

FFU Scotland can be contacted on 07951678213 / 01294 537566 . If not available please leave a message and one of the directors will call you back.

 

Areas Covered

Opening Times

• DAILY | Online supports via Facebook social media
• Tuesday | 7pm -9:30pm on for each monthly meet CROSSHOUSE
• Thursday | 7pm -9:30pm on for each monthly meet IRVINE